Barr-Harris director speaks at Huntington's Society conference
The first focused on Losing a Loved One: How to Cope and Find Hope. She also co-led a session on mental health awareness with Miranda Spencer, a registered nurse and member of the group’s National Youth Alliance. Spencer has four family members that are gene-positive for HD and has many other family members at risk. Both sessions focused on providing practical tools and insights for families and individuals living with Huntington’s Disease.
Huntington’s is best known as the disease that took the life of folksinger Woody Guthrie at the age of 55 in 1967. The roots of the society started in work by Guthrie’s widow to raise awareness of efforts to combat the disease.